There is proof that Probiotics works to help correct autism and aspergers. My son is an Aspie and he is improving due to the intake of his multi vites, his probiotics and his cod liver oil!
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Re: Probiotics and Autism
Sun, February 17, 2008 - 7:06 PMhi aries/scorpio:
altho you post this a rather long time ago, I would like to respond. i'm
a slp and work with autisic/aspergers children. I also have crohn's disease and am a great proponent of probiotics. i'm interested in probiotics and austism. would be interested in you and your child;s expereience. thanks for your attention and time.
marcia -
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Re: Probiotics and Autism
Mon, February 18, 2008 - 11:12 AMWhat is your favorite form of Probiotics? We eat yogurt, but there are those who function better without dairy. Any suggestions? -
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Unsu...
Re: Probiotics and Autism
Mon, February 18, 2008 - 6:08 PMWell there is a chewable form that kids can take. Sean loves to suck on it because its orange flavor. It's called Buddy Bear. His digestion is much healthier and he's able to maintain focus at school. In fact he begs to go back to school.
www.renewlife.com/kids/Probiotic.aspx
Also cod liver oil and a liquid multivitamin are helpful. :) -
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Unsu...
Re: Probiotics and Autism
Mon, February 18, 2008 - 6:08 PMGoats milk, sheeps milk and raw cows milk are healthy too.
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Re: Probiotics and Autism
Wed, April 2, 2008 - 9:14 AMI too use omega 3,6,9 oils, probiotics and magnesium/B vit supplements. I am also trying gluten/dairy free diet as I am also on the same diet due to a different condition and dairy intolerance runs in our family.
I think I can see an improvement in my son's ability to pay attention and to communicate to me. But it's difficult to state that definately, as he may have made this progress anyway. I am not sure I would agree with your wording that priobiotics can help "correct" autism. It may help, and I think we would all do anything that would help. But autism is a lifelong pervasive condition that cannot be corrected. Even with vast improvements the way his brain functions will be different. -
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Re: Probiotics and Autism
Fri, April 11, 2008 - 11:28 PMI had to join this tribe just to respond...
I am the mom of an 8 year old diagnosed with autism when he was 4. Over the last 4 years we have done a lot of "biomed", that is, diet, supplements (including probiotics) and chelation therapy. We have seen a reversal of our sons diagnosis.
Can probiotics "correct" autism? I believe it is a step that makes it possible. I believe autism is "correctable", or to put it plainly, reversible. Many parents state their child developed normally until some sort of environmental assault - an illness, vaccines, etc... and then they slipped away. I feel in many cases autism is triggered by an overload of toxins in the body of a genetically inclined child, and removing the toxins can reverse the damage done, sometimes entirely. I know a lot of other parents who have had partial or complete reversal of their childs diagnosis.
Does my childs brain function differently than most? Undoubtedly. But that is an amazing thing, and how wonderful for him... he is sharp as a tack, soaks up information like it is going out of style but has the ability to communicate in a normal manner with other people. He makes fantastic eye contact, has conversational language, smiles, laughs, has friends and is being mainstreamed as I type. Is he quirky? Heck yeah, and I love that about him.
When I tell people about his diagnosis they look at me with shock and disbelief. A doctor recently told me she never would have known. I can't tell you what that means to me. If you haven't immersed yourselves fully in researching biomedical treatments I would encourage you to do so. there is hope, and it is completely within your reach. :)
www.talkaboutcuringautism.org/index.htm
www.generationrescue.org
www.autism.com/
I am happy to share my experiences. Feel free to pm me. :)
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Re: Probiotics and Autism
Sat, April 12, 2008 - 2:23 PMGlad to hear of your sons improvements.
I don't quite understand alot of the debates going on around autism. As your son has made so much improvement, where would you say he is now. Is it a case of a 'cure' or is it making various chanages (some dietry) that have caused improvements, but is your child still autistic underneath?
I'm asking because I think there may be some symptoms for some people caused by various 'stuff'. For example I think dietry/environmental things may cause some symptoms (some typical autistic behaviours). But I also know that even if all those visual autistic behaviours were removed from my son his cognitive way of thinking eg. concrete and literal thinking would still be there. Of course if he were to make such improvements he would lose his diagnosis, but I think, although functioning better, he would still have difficulties with social interactions and some executive functions. -
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Re: Probiotics and Autism
Sat, April 12, 2008 - 4:19 PMI would say he no longer has autism. doctors agree, the school will be revising his IEP in the beginning of next year (they do it on a strict three-year schedule so they won't do it earlier) but in the meantime they are mainstreaming him. At the beginning of this year his new teacher in the self contained class came up to me and stated her confusion as to why such a normal child was in an autistic class. :)
Dont misunderstand, we still have things to work on, but I have no doubt he will be a self-sufficient and fully-reliant adult. I no longer wonder if he will be with me for the rest of his life, and who will take care of him when I am gone. He is highly social, has friends, has fantastic language skills and his motor skills are normal. He is potty trained, sleeps throught the night, has no sound or light sensitivities, very VERY rarely stimms (maybe a hand flap from time to time, but he claims he is pretending to be a bird... maybe they all are and they just can't tell us that, who knows?) On the flip side he still has narrow fields of interest.... but so do most kids. Mine just doesn't happen to be fascinated with matchbox cars, he happens to be fascinated by electronics and electical components.
He also is very healthy compared to four years ago. He used to have chronic eczema and ear infections, asthma and allergies. All of those things have cleared up considerably, and almost immediatley after starting biomed.
I prefer to use the word "recovery" when discussing autism. I do believe that a very small number of children are born with autsim, but for the vast majority it happens to them somewhere between the first and second year. I have come to think that perhaps a subset of the population has genetic variances that make them suceptible to environmental toxins, and these toxins cause metabolic and neurologic dysfunction. Live in a toxic world, more kids reach the tipping point and decend into the dysfunction we call autism. Remove the toxins and they start to come out of the cloud, some completely. Especially if you get started early so the damage is less likely to have permanent effects. I think that since we started a couple of years before the vast majority of brain development is complete we had excellent results.
Is he autistic underneath? Well, he will always have the genetic variations that make him more succeptible to environmental toxins. Proper diet, nutrition and supplementation can help avoid a backslide. When adults succumb to the increasing toxins out there it causes things like diabetes, eczema, auto-immune disorders, fibromyalgia, bipolar and depressive disorders, parkinsons, alzheimers... Different people with different genetics are different. This is why children respond to different biomedical approaches differently.
Anyway that was all my opinion, some of it supported by science, all of it supported by other parents who have had the same experience as us.
Oh, and social interaction changed for us in a MAJOR way with biomed. Our son blossomed, and amazingly fast, expecially with chelation therapy. We still have had to teach him some social rules, don't do this or that in public, say please and thank you, don't stare at people that are different... but gosh, we are jsut making up for lost time cause all kids have to learn that at some time or another. He wasn't capable of learning it at two or three or four, so we are doing it now. :)
What executive functions do you mean?
I hope this answers some questions for you. :) -
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Re: Probiotics and Autism
Sun, April 13, 2008 - 6:43 AMI'm glad you're son has had such a positive response to dietry intervention.
I don't know anything about Chelaton Therapy.
My son has been trying dietry intervention for about 4/5 months GF/CF. He also takes fish oils, magnesium, B Vits and Probiotics.
I started him on the diet because I have Fibromyalgia and I am feeling alot better on GF/CF diet, alot of my symptoms are lessening. I also had alot of sensory symptoms, although I am not autistic.
I think there must be many routes to autism, simply because different therapies have a positive effect on some children, but no response with others.
I find it a real pity that on some websites there is an almost fanatical approach either for or against interventions.
An adult with autism can make the choice for themselves if they wish to try interventions. And I think we have to respect those who just want to be accepted as they are. These are usually at the higher functioning end, and who can blame them everyone needs to respect anothers choice.
My paediatrician (and other professionals) said that the dietry intervention was only worth trying if he was showing severe behavioural problems. Which he isn't.
But because of my condition and a family history of dairy intolerance and genetic differences ie. hemochromatosis etc I decided to give it a go.
I haven't noticed a huge difference. But I think it takes over a year for gluten to get out of the system. He does seem a little spaced out. But even if he has similar symptoms to me, and the diet improves that, I still know that he is autistic and will need to keep to this diet for the rest of his life.
My son is 7 years old. He has a severe speech disorder. His understanding of receptive speech is at around 3 years. However he also has alot of sensory issues and maybe auditory problems are contributing to that. His expressive language is classed as normal. However he uses delayed echolalia from TV and DVDs, so he can use quite elaborate language, but he is putting his speech together like pieces of a jigsaw puzzle from phrases he has already heard. So it can give a false impression of his understanding.
He tends to be passive, not initiate social interaction. Although, if asked, he will play with others quite happily. He doesn't always manage to follow others imaginary play. Sometimes he can be totally unaware of everyone and everything around him.
He doesn't have any rigid routines or obsessions. He used to have problems with transitions, but that is much better. He doesn't appear to me to have a narrow range of interests. But he does have problems paying attention to anything he is not interested in. But I think he has most difficulty at school. Autism seems to have particularly affected him academically. He has trouble remembering letters/words/numbers out of their sequential place. For example, if I put ten letter cards on the table and I ask him to point to the letter 'b', he could do that. So he recognises it visually. But if I were to just pick up the letter 'b' and ask him "what letter is this", he cannot do it. So somewhere the communication between visual and verbal recognition is lost. He may also have dyslexia. He tends to write the mirror image of things ie. if I hold his work up to a mirror I can read it. I have just found out that he doesn't have binocular vision after a routine trip to the opticians. So he is seeing double vision close up.
Executive Functions: these are usually higher level brain skills. Difficulties you would begin to notice from school age upwards. It is things like being able to plan ie. If he was going to make a model would he be able to get everything together to complete the task. To sequence ie. does he understand the natural progression of how to complete a physical or mental task or would he put the steps in the wrong order or miss out some of the steps. Being able to organise yourself (aspects of planning and sequencing). Understanding 'time' ie. without an understanding of time you are unable to understand any concept requiring this understanding. Children may not understand yesterday, today, tomorrow. Trying to explain the past, present and future would not make sense to them. These children tend to function very much in 'the now' or on 'this day'. It will affect school work because you need to understand how long you are given to complete the essey, topic, exam etc.
I am just at the point of finding out if my son will get a Statement of Special Educational Needs. If he does then I will try to move him to a mainstream school that also have extra provision for those on the spectrum. He is presently at mainstream school, but the staff have very little understanding of his difficulties. He is making progress, but it is very slow. He is about two years behind his peers academically and I can see that gap getting wider.
He is interested in lego, puzzles, model building, electronic gadgets and how they work. He is a very kinesthetic learner.
I have seen on other web discussions people talking about getting positive blood tests back. As far as I have been told in the UK there is no test that can be done to say 100% if your child has food intolerances. Anything involving needs or skin prick tests are out of the question for my son. I have had his urine tested and that came back positive for peptides from gluten and casein. But again the professionals tell me that the presence of those peptides doesn't prove anything because they can also be present in NT population as well.
Someone else sent me information about the Marshall Protocol for Fibromyalgia and Autism. It sounds very interesting and I have forwarded the info to my nutricianist. But again no real proof of its relevance to FM and ASD. It also sounds a very long and invasive procedure.
But all we can do as mothers is try our best at things we think are relevant. -
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Re: Probiotics and Autism
Mon, April 14, 2008 - 6:22 AMSally, your boy sounds a lot like mine. Mine is six, diagnosed since he was two, never had functional language, even now. It makes me glad (and a little envious) when parents talk about their stories of "recovery", if that is what has actually happened, but we also tried the biomed for a while. We tried GF/CF for months and months with no noticeable changes. The only outcome is that now that he's no longer on the diet, he refuses outright to drink milk any more, so we have to find other creative ways of getting calcium into him. But, like your kid, he never had a lot of "behaviors". He was already at, it seemed, the functioning level that all the other kids we had heard about who had succeeded so dramatically on the diet achieved after being on the diet for a year. Except there was no communication, and there still is practically none.
We also tried vitamin B in combination with a handful of other vitamin and supplements, and we did that for almost a year and a half, and while we did see progress, there were no dramatic changes, and we concluded that the progress that he made would almost certainly have been made anyway over the course of that year and a half. I believe that biomed works for some people, but it simply doesn't work for others. My biggest problem with biomed is illustrated here pretty strongly: parentsofangels.tribe.net/threa...67dcb9
Read it if you want. I wrote it a long time ago, but pretty much still feel the same, that they're preying on the desperation of parents, selling solutions that may or may not work, just making themselves more wealthy in the process. And if it doesn't work, well, the parents must not have done it right. It's like a religion, and I'm not into that stuff either. So I'm glad to hear stories of children "recovering" for their own sake, and for their ability to take care of themselves one day, but I do tend to sincerely doubt whether the biomed had anything to do with said recovery, or if the child would have made those progressions anyway. -
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Re: Probiotics and Autism
Mon, April 14, 2008 - 11:39 AMI think all any parent wants is to help their child, so I do understand the motivation. But I don't believe in cure or recovery in the way that those words are used. I believe for some children it does have a positive effect and the children may improve enough to lose a diagnosis. But those children are still wired up differently and will still grow up feeling 'different'. I feel there are many children who 'don't quite make the criteria' who are badly let down by how the system is at present ie. you have to tick all the boxes to get a diagnosis. Many children are a mixture of autism, ADHD, tourettes, Dyspraxia, Learning difficulties, Dyslexia etc. It is a bit of a 'fruit salad' and professionals tend not to know how to deal with these children and without a diagnosis they tend not to get the provision or support they need.
I also think family life has to have a balance in all this, especially where other siblings are involved. I grew up in a family where my older sister has Learning Difficulties. It was very difficult for all of us. Many things happened to me that I never told my parents about ie. teasing etc. But now my sister works and lives independently.
I have been sent a really informative article from Wired which I will put on this forum.
Regarding speech, my son does have functional language (assessed at around age 3), along with delayed echolalia.
Is your son not verbal at all?
If you want to chat with me you can find my profile on medhelp.org on the autism forums.
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Re: Probiotics and Autism
Mon, April 14, 2008 - 11:42 AMThe article about autism on Wired is: stag.wired.com/medtech/he...3/ff_autism
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Re: Probiotics and Autism
Sun, April 13, 2008 - 6:48 AMI forgot another executive function. That is predicting outcomes. Obviously we adjust ourselves depending on our understanding of the future outcome. If we are unable to see the end product of what we are doing/saying/thinking life is going to be very difficult and confusing.
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Re: Probiotics and Autism
Thu, April 17, 2008 - 7:30 PMamazing lisa
thank you -
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Unsu...
Re: Probiotics and Autism
Fri, May 9, 2008 - 8:58 PMLisa! This is great news about your son! I hope he continues to be cured! -
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Re: Probiotics and Autism
Sun, May 11, 2008 - 2:42 PMWell I wouldn't use the word cure.... but recovery is pretty accurate. I can take my son off of his supplements and fill his diet up with junk food high in processed items with artificial colors, flavors, sugars etc and watch him backslide slowly. There is a lot of stuff going on in these kids bodies that affect them neurologically and if you treat the body well the mind responds too. :) It's like an alcoholic - you are never be cured of your alcoholism but you can be in recovery by controlling what you put in your body.
Anyway we continue or journey of treatment and things just keep getting better. I know some people are skeptical, and some try one or two things and don't see much benifit so they dismiss bio-med, but all I can say is it is worth trying everything you can (it is safe!) because you just never know what will help. I know SO many families on the spectrum and they all have differering experiences on what works, but at the end of the day the vast majority see at least some degree of improvement, and many see a very large improvements.
I was just a guest speaker on a panel of parents of recovering kids at an autism conference in phoenix- we all spent a few minutes sharing our stories and then we answered questions from the audience. It was amazing to hear the stories of the other parents up there with me, they were all different (in terms of what biomedical treatments made the biggest changes) but ended up almost the same - with pretty much "normal" kids (whatever normal is, ha ha) leading normal lives with friends, sleep overs - in mainstreamed classrooms.... wow, it brought tears to my eyes.
Good luck to everyone out there who travels down this path, I highly recommend giving it a try. You have nothing to lose!
Lisa
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