Spending 45 minutes (( for Governors office that LONG)) talking to someone about how if medicaid keeps taking away service from your daughter they will end up killing her and with you having enough guts to even take it to the news media and anywhere you can because it supposedly called preventive medicine but when they take that preventive medicine that may cost $200 every other month is better than the 10 of thousands that has to be paid for up to 4 days in the Peds ICU.


This was after spending 36 minutes on hold with Medicaid until someone answered me. Then me talking to thier supervisor. Only to be told unless you have something from the governor saying we HAVE to pay for this medicine its still not going to be paid for.

I know the 12 ampules of the breathing med costs alot but it keeps her out of the hospital.

What they are trying to do is make parents of severely handicapped children now put them in ""specialized"" nursing homes.
And we all know what happens in them. And as much as my daughter loves her one on one that would absolutely kill her.

Am fighting it not only for my daughter but other children out there that have been put in these places and more or less forgotten.

For Desirae Moody (age 4 ) That was actually getting better from her disease and the state telling her mother she would be well taken care of and then 2 months later dying from a staph infection.

For Isiah Franklin (age 13) Because medicaid took so many things including all but 36 hours a WEEK of nursing away his single mother had to put him in a nursing home because she couldn't work and take care of her son. Who died of proven neglect.