Drug Therapy...

topic posted Wed, May 9, 2007 - 8:59 PM by  Charlotte
No questions, just wanted to post my experience because I know that it can be hard sometimes to look at drug therapy for our kids.

About two years ago my son's behavior became even more extreme than is typical (his DX is High Functioning Autism), violent outbursts, screaming, throwing things, swearing...I thought I was losing my mind.

We started a drug therapy of Ritalin...after a week and a half there was a noticable different, but not dramatic so we discontinued the ritalin and started a course of zoloft. Miraculous turn around. Turns out that in addition to his HFA he has a severe anxiety disorder and ADHD. He has been on the zoloft for nearly a year now and the result has been incredible...we are also seeing successful improvement with the Straterra (non-stimulant med). My son's behavior has improved dramatically, his impulsiveness is relaxing, he isn't a slave to his anxiety...we've had a very successful and positive experience.

Just wanted to share.
  • Re: Drug Therapy...

    Thu, May 10, 2007 - 8:28 AM
    I think the key is the RIGHT meds.... and having a doc that communicates well with you so you can work together to find what works. My biggest problem over the years has been dealing with docs who think all meds are wonderful and other treatments are substandard.
    • Re: Drug Therapy...

      Thu, May 10, 2007 - 9:42 AM
      I agree, we went through, seriously, a nearly year long diagnostic process to make sure that we were on the right track. There was almost four months of a thorough neuropsych evaluation that included school visits, speaking with every single professional on my sons therapy team and a battery of about 40 tests.

      That was followed up with a referral to a psychiatrist who repeated some of the tests and interviews to confirm results. We had a very thorough, terrific team and felt comfortable with the diagnoses and suggested drug therapies. It was ghastly expensive but worth every penny to see him not *struggling* so hard just to make it through a day.
      • Re: Drug Therapy...

        Thu, May 10, 2007 - 9:45 AM
        a note: before going down this path we had spent about four years on behavior based therapies, OT, Social Skills groups, clinical psych, the works. While they definitely gave us tools, for our boy it just wasn't enough. The chemistry in his head is just off and the meds have balanced him.

        He still does the OT, social skills groups, clinical psych and all the rest. We've just found that for him the combination of behavior therapy and meds is the best option.
        • Re: Drug Therapy...

          Thu, May 10, 2007 - 10:42 AM
          If there was a drug that helped non-verbal kids organize the speech centers of the brain, I'd be on that like white on rice, but it's good to know that, should our boy ever develop behavioral issues, there is another possible route to take.
          • Re: Drug Therapy...

            Thu, May 10, 2007 - 10:52 AM
            Amen.

            It was agonizing to watch his downward spiral and feel helpless to stop it. When we started the ritalin is cleared away the ADHD cobwebs and from there we could see the incredible level of anxiety that was punishing him. He couldn't tolerate a single deviation without flying into hysterics of terror. Screaming, crying....sometimes it looked like a rage so out of control that we were just speechless, but it was all anxiety.

            The Psychiatrist warned us that it could take up to 8 weeks to see the effect of the zoloft once we switched over, but we got *three* calls on the same day from three different people in his school during the first week of the zoloft to report that he was showing a major behavioral difference. I hadn't told them he was going on the zoloft either, I didn't want to prejudice their observations. (though I imagine it would be hard to prejudice observations between a kid screaming obscenities, throwing chairs and refusing to stand up and the same kid sitting at his desk, fidgiting like crazy and unfocused, but calm and quiet and cooperative.)

            Honestly it was such a dramatic turnaround.

            I wanted to think that we could do it without med, that taking a pill cocktail every morning for possibly years wouldn't be a part of his life. I am still not in love with it, but I'd crawl over broken glass for him....and this is certainly not as painful as *that* would be. :-)


            So your boy isn't talking yet? How is everything else for him?
        • Re: Drug Therapy...

          Thu, May 10, 2007 - 1:45 PM
          oh yeah, I think *most* parents would be inclined to try non-pharma options first - I'm just saying make sure the docs you work with are on the same page or at least understand where you stand with regard to meds and other therapies.

          My oldest took meds for years - kind of helped him keep it together while he learned coping skills, etc. He's in middle school now and no longer takes meds - at this point counseling and behavioral therapy is enough. For him dropping OT was a huge improvement. Part of his disability is physical awkwardness and no amount of OT is/was going to change that so it just proved to be ridiculously frustrating for him which would lead to meltdowns.

          My daughter will probably be on meds most of her life (she's bipolar) but that doesn't mean she won't benefit from other things as well - we as parents know that, but we need to make sure we associate with professionals that also hold that view. I would much rather see her on a maintenance dose of lithium and in a setting that actively teaches her social/coping skills then to have her "stoned" and going without those other types of treatments
          • Re: Drug Therapy...

            Fri, May 11, 2007 - 9:00 AM
            <<If there was a drug that helped non-verbal kids organize the speech centers of the brain, I'd be on that like white on rice>>

            oh yeah, i agree, or else a drug that would enable me to read shilo's mind. most of our behaviour problems stem from lack of communication.
            • Re: Drug Therapy...

              Fri, June 8, 2007 - 1:33 PM
              I can relate. I am also in favor of using the least invasive treatment possible. I'm too scared of what could go wrong with my son Sequoia's emotional health later on in his life to give him stuff to just adjust his attention or behaviour in such an aggressive way. I have friends who have health issues to this day after having been given ADHD meds as a young adolescent. Respiratory stuff and depression. There are so many great alternatives now. Craniosacral therapy, Hippo therapy, Nutritional therapy, Myofascial release, walking, swimming, and lots of affectionate attention. Give yourself some love and time out to reflect on how amazing life is! Diversity is good, right.
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    Re: Drug Therapy...

    Thu, May 17, 2007 - 5:58 PM
    UGH! I don't believe in this! I had my son on Ritalin and he halucinated! I'm giving him a dropper full of Valarian root once a day for now and it's working better! It's all natural/all herbal and healthy. We also eat organic food. I never felt right about putting him on any drugs at all and I certainly won't have him go back on them since I've had him taken off of them! I was alarmed hearing how his academic performance at school was dropping when he was on meds! And he was on 2 different kinds, two different times too.
    • Re: Drug Therapy...

      Fri, May 18, 2007 - 12:16 PM
      Ritalin certainly isn't right for every kid, it wasn't right for mine either. The diagnostic process is very important. I can't comment for any child but my own and for my own this has been the best decision. He is much improved and in a much better place emotionally. He is happier and feels better, that is enough for me.
      • Re: Drug Therapy...

        Fri, May 18, 2007 - 3:14 PM
        Hi- I'm new here. Your experience is very interesting to me because I'm having similar difficulties with my 10-year old son who has high functioning autism. He has never been on any medication. We've always been very resistant to medicating him because we wanted him to learn how to deal with his challenges without any dependence on drugs. Lately his behavior has become a lot more difficult though, and we're wondering if meds are the way to go. I wonder if he's depressed or if he has some other diagnosis I'm not aware of. He's very angry and BORED when he's not playing his beloved video games! We're at the end of our rope, so it helps me to see that some have had positive experiences with medication. I'd be interested to hear from others as well -- positive and negative.

        Thanks.
        • Re: Drug Therapy...

          Fri, May 18, 2007 - 4:58 PM
          Jess,

          Our psychiatrist told us that in children depression can manifest itself in aggression...hence the use of an antidepressant to treat what appeared to be all out rage. I was in the same position as you...really wanted the behavioral therapies to be the magic bullet but it just wasn't enough.

          Talk to you pedatrician for a referall to a diagnostic neuropsychologist. That person can administer a battery of tests for a wide variety of issues and then make recommendations and refer you to a psychiatrist. It won't be quick or cheap, but then it shouldn't be if you want it done well.

          Don't be afraid to listen to your gut and don't be worried if your professionals disagree. Our neuropsych really thought that OCD was in play for my son, but all of the interviews and the drug trials indicated that it was not. She was a good doctor and able to stand down from that position when it became clear that no on esle concurred.

          Don't be afraid to repeat tests (I can't count the number of times that I've filled out the Connor's) A good diagnosis is based on a thorough exam. For me meds aren't the enemy, badly prescribed meds are, and I was *very * afraid of badly prescribed meds. I still approach every conversation about meds with a lot of stress but my son's therapy team is very patient and has no problem directing me to resources, research, answering questions, giving me time to absorb. That is the kind of relationship that has made the whole process easier.

          And having my son make it through weeks and weeks of class, improved peer relationships, improved schoolwork...well...we always hear about the negative experiences so I wanted to share my very good one.
          • Re: Drug Therapy...

            Fri, May 18, 2007 - 6:48 PM
            Thank you so much for the feedback, Charlotte. I will definitely seek out a diagnostic neuropsychologist and find out what they say. It's been almost five years since he was diagnosed so it will be interesting to hear if his diagnosis has changed.

            It's so great to hear from others in the same boat as you!
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          Re: Drug Therapy...

          Mon, May 21, 2007 - 4:05 PM
          Well....I'm more for the drug free type of lifestyle. I appreciate the safe herbs we have on this earth that can contribute to settling down a child or even just the simple outdoors for long periods of time.
          • Re: Drug Therapy...

            Fri, June 8, 2007 - 3:41 PM
            Herbs can be wonderful, but it is important to remember that as an unregulated industry consumers can be as vulnerable to unprofessional herbologists as they can be to unprofessional doctors. Likewise, many herbals act in the same manner as the meds that are synthesized to perform a particular function. Valerian Root, for example, acts in a similar manner to valium.

            The key in giving *any* paliative substance, whether it comes out of the ground or is synthesized in a lab, is to understand what you are giving, what you should (and should not) expect to see, and to approach it with a healthy sense of respectful caution. Foxglove is poisonous, the digitalis that is synthesized from it can save a life. Moderation and knowledge are always key.

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