Hi there!
I just joined this group as sometimes we all need to sit/stop/reflect and realize that we are not really alone (there are others out there going thru the same sort of ups and downs)
I am the mother of a 4 yr old non-verbal Autistic boy....he is my special 1 out of 150
I am also Epileptic...so we live a chaotic life of the unexpected...
We are not sure of the root cause of my son's Autism or my Epilepsy...and at this point...I'm much more concerned about focusing on the continuation of progress and not what got us here in the first place :)
(thats probably due to my own baggage...and the realization that you never truly know whats going to happen next)
Its wonderful to meet you all...I hope all is going very very well for you
..Kar
I just joined this group as sometimes we all need to sit/stop/reflect and realize that we are not really alone (there are others out there going thru the same sort of ups and downs)
I am the mother of a 4 yr old non-verbal Autistic boy....he is my special 1 out of 150
I am also Epileptic...so we live a chaotic life of the unexpected...
We are not sure of the root cause of my son's Autism or my Epilepsy...and at this point...I'm much more concerned about focusing on the continuation of progress and not what got us here in the first place :)
(thats probably due to my own baggage...and the realization that you never truly know whats going to happen next)
Its wonderful to meet you all...I hope all is going very very well for you
..Kar
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Re: Intro...Hi!
Mon, October 22, 2007 - 6:56 AMWelcome! I think not focusing on the causes of your individual situations is a great idea. Once we were able to stop focusing on what "did this" to our child (just turned six and teetering on the edge of verbal autistic) and learned to accept that this is just part of who he is and we love him anyway, our lives felt a lot less cluttered and hectic. Still pretty crazy, still struggling with weekly spelling and reading words, but there is no more inherent sadness or unhappiness in this life than in any other. It can be more challenging than most, but no certainly no worse.
Again, welcome to our tribe.
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Re: Intro...Hi!
Sun, November 11, 2007 - 10:05 PMThere came a point in my daughter's life about two years ago when I realized we were both exhausted from hunting for the REASON. She still doesn't have a diagnosis for her ataxia and hypotonia, nor do we know why her cerebellum continues to shrink. Test after test has revealed nothing. On paper she's perfectly healthy. We were so focused on what was wrong, we had no time to enjoy what was right. And my daughter was not being allowed to just be a kid. So we stopped the hunt for "answers" and are enjoying our lives today. She is thriving and happy. If she wants to continue the testing when she's older, that will be her choice and I'll support her in that. But right now, lets just figure out how to be a 6th grader. -
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Re: Intro...Hi!
Fri, November 16, 2007 - 10:07 AMThank you! It's so good to hear that. There are always days that can be exhausting, moments of utter frustration, piles of diapers with no end in sight; but one smile, one "soul filling, pure as God's light" smile can keep me going. We let go of finding a reason why long ago. We try to just let Sequoia, our 7 year old son, be the person that he is and leave the labels at school. It just feels so good to know there are other parents with such open minds and love.
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